The day they crashed my very being!
By now, you know my Queen is a type 1 diabetic(T1D)
Finding a school that can offer her basic support didn’t come in easy
With all my reservation, this school in question convinced me beyond reasonable doubt that they would support my Queen
I yielded!
Indeed year 1, went pretty much smoothly
Year 2 the potholes started to show and grew so big within that year
By year 3, we had fixed a few of the holes, but we never went back to the smooth road of year 1
Ahaaaa! News of a school tour to the central part of this land is dropped on my table
I have to part with an obscene amount of cash
But, that is not our focus today
I received the beautiful news with mixed feelings
Questions on my Queen's well-being flooded me
Did I want to trust the school with my Queen’s life even at night?
Would they religiously give her night shots and do the 3:00am tests and sit up depending on results?
Would they really keep an eye on her?
I poured my concerns to the school heads and staff
I was assured she would be well taken care of
Granny re-affirmed this
The day apparently drew closer and was just at the corner
In the eye of my mind I thought we still had a month instead of a week
Queen kept reminding me to pay, as the teachers were on their bumper to ensure that all kiddos paid for this “memorable” trip.
I found myself in the office one of the days because one of the school heads needed to show me the school calendar with the dates since I was being a Thomas
They had a rough itinerary drawn at the back of the program
I still put across my worry, the reassurance came my way like before
The next day I sent Queen with the money
It was one of my super super broke days, but what mothers do for their babies!
Only our kind know!
Just a day after paying, a day she would get her receipt for payment
Things crashed, so hard that it shook us all and left me in a terrible wreck!
Apparently the school would not take children with complications for this tour
Yes they wouldn’t take Queen because she is a T1D!
Now I get it when children get segregated, isolated, pushed away for a condition they didn’t ask for...we did not ask for diabetes!
When they were planning this “memorable tour” of theirs
Why didn’t they set the standard?
Why did they keep playing with our hearts, minds, souls like this?
Why did they insist on us paying when they are a lot that breeds discrimination!
Why
Why, really
Damage caused
In my bitterness, I told them to refund the money to Queen and explain why she was being dropped
I pointed out how insensitive they are and guess more
I was very very disappointed in my choice of school
You might be asking why I am still keeping my Queen there
It might just be a matter of time
You might be asking why I am not pursuing the matter
Our land is a strange one pal
More salt on my wound
I am summoned to see the head head of head of school
I walk in and take a seat
He is unable to look me in the eye and twitches in his chair
He is uncomfortable
The very first time I am seeing him in this state
He goes around the issue at hand
“Does Queen get any complications from travels?”
He rants on and on
I tell him no,
And remind him that Queen ain’t suffering from a physical or organ condition
It’s a hormonal thing mister
Yeah she gets travel fatigue like many “healthy beings” out there
God! She inherited travel sickness from me!! Quite a nasty experience!
Queen has travelled more than an average citizen here ...yeah...we prepare fully for every journey
Mister hits a nerve when he asks whether I know that the road to the Central part of the land is bumpy
Even the villager In me knows that that particular road has been worked on
Just the humps like any road around
At this point I am boiling and all I want is out
With every energy left I slowly give him my perspective and demand for our unused money
When your institution open doors for people with any form of disability or condition
Always plan for them
Because you just embraced them the way they are!
Always make them fit
For when you cut through their skin
They will bleed red not green
They think like you
They have emotions like all you “normal” beings
They hurt like me and you
Do not inflict in them more pain for they carry a load heavier than you will ever imagine
They fight a battle that will only end with one side winning and the other losing
Their battle runs day and night ..no rest for that small second taken off the monstrous cold claws can snatch them from the face of the earth for eternity
Never gamble over life
Never take people like Queen for granted
Don’t discriminate
And this is life we are talking about
If you don’t value it, others do
Maybe we should borrow a leaf from animals and birds
Have accommodative structures within your complexities
FROM THE DEPTH WITHIN ME
AYENYO Joanita
Finding a school that can offer her basic support didn’t come in easy
With all my reservation, this school in question convinced me beyond reasonable doubt that they would support my Queen
I yielded!
Indeed year 1, went pretty much smoothly
Year 2 the potholes started to show and grew so big within that year
By year 3, we had fixed a few of the holes, but we never went back to the smooth road of year 1
Ahaaaa! News of a school tour to the central part of this land is dropped on my table
I have to part with an obscene amount of cash
But, that is not our focus today
I received the beautiful news with mixed feelings
Questions on my Queen's well-being flooded me
Did I want to trust the school with my Queen’s life even at night?
Would they religiously give her night shots and do the 3:00am tests and sit up depending on results?
Would they really keep an eye on her?
I poured my concerns to the school heads and staff
I was assured she would be well taken care of
Granny re-affirmed this
The day apparently drew closer and was just at the corner
In the eye of my mind I thought we still had a month instead of a week
Queen kept reminding me to pay, as the teachers were on their bumper to ensure that all kiddos paid for this “memorable” trip.
I found myself in the office one of the days because one of the school heads needed to show me the school calendar with the dates since I was being a Thomas
They had a rough itinerary drawn at the back of the program
I still put across my worry, the reassurance came my way like before
The next day I sent Queen with the money
It was one of my super super broke days, but what mothers do for their babies!
Only our kind know!
Just a day after paying, a day she would get her receipt for payment
Things crashed, so hard that it shook us all and left me in a terrible wreck!
Apparently the school would not take children with complications for this tour
Yes they wouldn’t take Queen because she is a T1D!
Now I get it when children get segregated, isolated, pushed away for a condition they didn’t ask for...we did not ask for diabetes!
When they were planning this “memorable tour” of theirs
Why didn’t they set the standard?
Why did they keep playing with our hearts, minds, souls like this?
Why did they insist on us paying when they are a lot that breeds discrimination!
Why
Why, really
Damage caused
In my bitterness, I told them to refund the money to Queen and explain why she was being dropped
I pointed out how insensitive they are and guess more
I was very very disappointed in my choice of school
You might be asking why I am still keeping my Queen there
It might just be a matter of time
You might be asking why I am not pursuing the matter
Our land is a strange one pal
More salt on my wound
I am summoned to see the head head of head of school
I walk in and take a seat
He is unable to look me in the eye and twitches in his chair
He is uncomfortable
The very first time I am seeing him in this state
He goes around the issue at hand
“Does Queen get any complications from travels?”
He rants on and on
I tell him no,
And remind him that Queen ain’t suffering from a physical or organ condition
It’s a hormonal thing mister
Yeah she gets travel fatigue like many “healthy beings” out there
God! She inherited travel sickness from me!! Quite a nasty experience!
Queen has travelled more than an average citizen here ...yeah...we prepare fully for every journey
Mister hits a nerve when he asks whether I know that the road to the Central part of the land is bumpy
Even the villager In me knows that that particular road has been worked on
Just the humps like any road around
At this point I am boiling and all I want is out
With every energy left I slowly give him my perspective and demand for our unused money
When your institution open doors for people with any form of disability or condition
Always plan for them
Because you just embraced them the way they are!
Always make them fit
For when you cut through their skin
They will bleed red not green
They think like you
They have emotions like all you “normal” beings
They hurt like me and you
Do not inflict in them more pain for they carry a load heavier than you will ever imagine
They fight a battle that will only end with one side winning and the other losing
Their battle runs day and night ..no rest for that small second taken off the monstrous cold claws can snatch them from the face of the earth for eternity
Never gamble over life
Never take people like Queen for granted
Don’t discriminate
And this is life we are talking about
If you don’t value it, others do
Maybe we should borrow a leaf from animals and birds
Have accommodative structures within your complexities
FROM THE DEPTH WITHIN ME
AYENYO Joanita
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